About

About the Children with Down's Syndrome Study.

What is it?

CDSS is a landmark study set up with the support of the Down's Syndrome Association, the Down's Syndrome Medical Interest Group, families of children with Down's Syndrome, health professionals and researchers in order to learn more about the health of children with Down's syndrome. Children in the Study will be followed from birth onwards. The information gathered will help us to understand their health in order to improve health care delivery to all children with Down's syndrome.

Who can enter?

Any family with a child born with Down's syndrome after 1st May 2006 can join the Study. Most families will be invited to take part by a health professional involved in their care. If you would like to take part, but have not yet been invited to do so, then you may contact us directly.

Where is the Study Taking Place?

The study was launched in the area covered by the Yorkshire Regional Neonatal Network on 1st May 2006. Having been successfully piloted in this Network area, we are now in the process of rolling the study out to other Neonatal Networks across the UK.