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Helpful Links
This section provides details of organisations which offer information, advice or support which may be helpful for you or your child.
Organisations relating specifically to Down's syndrome:
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Down's Syndrome Association (DSA)
Langdon Down Centre
2a Langdon Park
Teddington
Middlesex TW11 9PS |
Tel: 0845 230 0372
Fax: 0845 230 0373 |
Web: www.downs-syndrome.org.uk
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The Down's Syndrome Association provides information and support on all aspects of living with Down's syndrome. In addition, they have information about local or regional groups that offer support and advice to individuals with Down's syndrome and their families.
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Down's Heart Group
PO Box 4260
Dunstable
Bedfordshire
LU6 2ZT |
Tel: 0845 166 8061
Fax: 0845 166 8061 |
Web: www.dhg.org.uk
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The Down's Heart Group offers support and information to families who have a member with Down's syndrome and a heart problem.
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Down's Syndrome Medical Interest Group
Web: www.dsmig.org.uk
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DSMIG is a network of doctors with a special interest in Down's syndrome and provides information for health professionals.
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Down's Syndrome Vision Research Group
School of Optometry and Vision Sciences
Redwood Building
King Edward VII Building
Cathays Park
Cardiff CF10 3NB |
Tel: 029 2087 6163 |
Web: www.cardiff.ac.uk/optom/DownsSyndromeGroup/Home.html
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This is a group of researchers based at Cardiff University looking at the relationship between visual development and learning in children with Down's syndrome.
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Mosaic Down Syndrome UK
Web: www.mosaicdownsyndrome.org
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Mosaic Down Syndrome UK offers support specifically for parents of a child with mosaic Down's syndrome.
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Scottish Down's Syndrome Association
Down's Syndrome Scotland
158/160 Balgreen Road
Edinburgh EH11 3AU |
Tel: 0131 313 4225
Fax: 0131 313 4285 |
Web: www.dsscotland.org.uk
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The Scottish Down's Syndrome Association aims to improve the quality of life of everyone in Scotland with Down's syndrome. It provides help and information to them and their families or carers.
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Other Useful Organisations
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Children's Information Service
Tel: (Freephone) 08000 96 02 96
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| The Children's Information Service (CIS) gives information about the full range of childcare available in different areas. |
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Family Fund
Po Box 50
York YO1 9ZX |
Tel: 0845 130 4542
Fax: 01904 652 625 |
The Family Fund is an independent organisation (funded by the government) providing grants and information to families caring for a severely disabled child under 16.
Web: www.familyfund.org.uk |
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KIDS
6 Aztec Row
Berners Road
London N1 0PW |
Tel: 020 7359 3635
Fax: 020 7359 8238
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This is a national charity dedicated to helping children and young people with special needs and offers a range of services to them and their families or carers.
Web: www.kids-online.org.uk |
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Makaton Vocabulary Development Project (MVDP)
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31 Firwood Drive
Camberley
Surrey GU15 3QD |
Tel: 01276 61390
Fax: 01276 681368 |
Offers materials and training in the use of Makaton sign language.
Web: www.makaton.org |
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Mencap |
Mencap National Centre
123 Golden Lane
London EC1Y 0RT |
Tel (Freephone): 0808 808 1111 |
This is the UK's largest charity working with people with learning disabilities and with their families and carers. It provides a range of advice and support and campaigns for the rights of those with learning disability.
Web: www.mencap.org.uk |
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National Deaf Children's Society |
15 Dufferin Street
London EC1Y 8UR |
Tel: 020 7490 8656
Fax: 020 7251 5020 |
The National Deaf Children's Society provides information about all aspects of childhood deafness including temporary conditions like glue ear.
Web: www.ndcs.org.uk |
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National Portage Association |
PO Box 3075
Yeovil
Somerset BA21 3FB |
Tel 01935 471 641
Fax 01935 471 641 |
Portage is a home visiting educational service for pre-school children with additional support needs and their families.
Web: www.portage.org.uk |
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Royal College of Speech and Language Therapists |
2 White Hart Yard
London SE1 1NX |
Tel: 020 7378 1200
Fax: 020 7403 7254 |
This is a professional organisation which also offers advice and information for the public.
Web: www.rcslt.org |
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